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Being Heard is our self-advocacy guide for carers


Self-advocacy is about speaking up for yourself. It’s about getting your voice heard and effectively communicating your own interests. Our guide has been designed to help you communicate your needs with professionals, understand your rights and look after your wellbeing.
 

Caring can be rewarding but also very isolating. You may not know what help to ask for, how to ask, or indeed who to ask. 

Being Heard:a self-advocacy guide for carers  can help you get your voice heard when you care for someone. Self-advocacy is also about being able to have your own needs listened to, as well as speaking up for the person you care for. 

The guide stems from work carried out by Carers Scotland and the Scottish Government from 2011, and each guide reflects the situation for carers in each UK nation. 

Updated in 2020, the guides are packed with new information on carers’ rights, as well as how to speak up and look after your wellbeing. For useful accompanying resources, such as a complaints letter template, see the links below. 

 

Main guide 

Click the relevant link below to download the Being Heard  guide:
 

Being Heard - a self-advocacy guide for carers - England 

Being Heard - a self-advocacy guide for carers - Wales - English   

Being Heard - a self-advocacy guide for carers - Wales - Welsh

Being Heard - a self-advocacy guide for carers - Scotland   

Being Heard - a self-advocacy guide for carers - Northern Ireland 

 

You can order printed copies from our  online shop.  

 

Other useful resources

The guide also features extra resources to download: 

Watch the following video about self-advocacy:

Latest updates

News
Carers Scotland 60th Anniversary Reception and Exhibition
01 December 25
60 years of campaigning for change for unpaid carers 
Press Release
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Government confirms benefit increases for 2026-27, including rise in Carer’s Allowance and earnings threshold
28 November 25
Unpaid carers will see an increase in carer-related benefits as part of annual government upratings from April 2026, including Carer’s Allowance. 
Press Release
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Autumn budget reaction from Carers UK
26 November 25
The Chancellor has earmarked £75 million over the next three years to put right the failures that led to the Carer’s Allowance overpayments scandal. Yesterday’s commitment to reassess cases where averaging of earnings could have reduced overpayments is a vital step towards addressing the injustices carers have faced for far too long.
Press Release
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Unprecedented changes for carers as Government responds to Carer’s Allowance overpayments review recommendations
25 November 25
It’s a landmark day today for the carers’ movement now that the Government has responded to the independent review of overpayments by Liz Sayce OBE.

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